Cynulliad Cenedlaethol Cymru

National Assembly for Wales

Bil Awtistiaeth (Cymru) drafft

Draft Autism (Wales) Bill

Arolwg Ar-lein DAB164

Online Survey DAB164

Ymateb gan Cyfrannog ar-lein 164

Evidence from Online Participant 164

Please refer to questions in the Online Survey.

Question

Answer

01

Yes

02

Yes

03

No

The list does not include police & judicial system. There are examples of the police not understanding that key aspects of autism e.g

An autistic adult having a meltdown being arrested or

the need to have women officers searching for a missing autistic girl who would have been told by parents about ‘stranger danger with the emphasis on men’.

The judicial system has imprisoned people with autism when had their skills in eg IT been redirected they may become useful members of society instead of having long prison sentences

It is not clear whether social services are included in the list: On one hand, if they had more understanding of autism, adults on the spectrum would be less afraid of asking for help with parenting issues. On the other hand one consultees experience of having an autistic parent who thought all babies were ‘Devils in nappies’ chimed with a recent case where an adoptive parent who killed a baby is quoted as saying the child was ‘Satan in a babygro’

04

Yes

05

6 months is good

06

3 months is good

07

3 months is good

09

Yes

10

Yes

11

Education/teaching/training & support staff.

Educational Psychologist

For young people it should be a child or adolescent peychologist

Physiotherapist

12

Difficulty of accessing services in rural & dispersed communities and where there is poor public transport provision.

Also the funding in rural areas affects provision

Lack of coordination between counties /Cross County border issues

Play facilities in Ceredigion (2 miles away) cannot be accessed and parents are told to travel 28 miles for Pembrokeshire’s provision. This is not practical for most children on the spectrum

13

Yes

14

There needs to be:

1. Assessment of whether children are getting what they are assessed as needing

2. Assessment of impact perhaps using case studies

15

It should be written on the Bill.

16

Yes

17

It should happen every 3 years.

A three year cycle of ‘Plan, Do, Review’

18

In Welsh medium schools some teachers refusing to have autism training unless/until it is provided in Welsh harms children.

Could it not be done using simultaneous translation

Where children have struggles with language the child should be educated in the language which best fits the home language which may be neither English or Welsh

The judicial system has imprisoned people with autism when had their skills in eg IT been redirected they may become useful members of society instead of having long prison sentences

19

The Bill has no provision for Review of Needs after the initial assessment

There needs to be provision for measurement of growth, ongoing analysis, leading to new measures & targets

There is little mention of training or funding for training

Case studie